From Desk Till Dawn

My mainly music & nerd bird blog

A Gentle Hum Of Hope

with 4 comments

During the British Tinnitus Associations awareness week I blogged about my relatively new experience of being a Tinnitus sufferer. I mentioned that help and advice from the two doctors I had seen had been conflicting and vague. Through my own fault, but because of my experience with the doctors, I didn’t push to see a specialist ENT doctor. I felt there was no point, this was something I was stuck with so I had to simply find a way to live with it. That has proved impossible, I have wept tears of frustration, suffered severe lack of sleep, sulked and despaired over Tinnitus.

This morning I met with a brilliant ENT consultant and for the first time in six months I feel the gentle of hum of hope. It’s hard to describe Tinnitus, give sufficient words to something that effectively only happens in your head,  but he understood every bumbled answer I gave, even when I described how it shifts from ear to ear depending on what side I’m lying on in bed, like tipping a snow globe.

He explained how  sometimes Tinnitus can be a symptom and not the cause, the sole problem. He suspects, after much prodding, poking and tuning fork testing that a dysfunction in my Eustachian Tube is responsible. That idea, a faulty dysfunctional tube, is much more concrete to me than the constant buzz no one can hear.

So now I’ll have to tell people I have a Eustachian tube dysfunction which is causing my Tinnitus. That’s already a lot more information than I’ve been given prior to seeing a specialist and you know what they say about knowledge.

I now have to perform what looks like a faulty yoga pose twice a day while I stick nose drops up my hooter for two weeks. This is the helpful diagram I was given. If this doesn’t help then I’ll go back and we’ll look at other options.

 One thing that has astounded me over the past few months is how many people suffer from Tinnitus, and even more worrying is how many people feel that their doctors are not equipped to help. I have blogged about my experience today because I felt duty bound to urge people suffering to insist on ENT appointments, not to be brushed aside and told to “deal with it”. I haven’t blogged because I like typing Eustachian Tube.

Here’s to happy hearing.

Follow me on Twitter here and The British Tinnitus Association here.

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Written by Anon PA

April 13, 2012 at 11:16 am

4 Responses

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  1. I am lucky enough to only have it very mildly so as I only notice it on occasion at night but it is a common complaint in anyone that spends a lot of time around loud music. I started wearing earplugs to band practice and gigs years ago, I felt a bit of a tit wearing bright yellow ones so invested in a decent pair that are moulded to my ears. Expensive but they are discrete, don’t kill the sound like foam ones and make gigs a much nicer experience because of it – I can’t recommend them enough!

    I hope the downward dog drops help 🙂

    peejaybe

    April 13, 2012 at 1:30 pm

  2. GOOD LUCK – fingers crossed it all clears up x

    youarenotlostyouarehere

    April 13, 2012 at 4:01 pm

    • Thanks so much. Nice to feel a bit more positive about it. We shall see. xxx

      Anon PA

      April 14, 2012 at 7:56 pm

  3. […] jetted off to Istanbul for an exciting work trip within two weeks of joining them and contracted Tinnitus on the return flight to […]


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